Have news? Please send us your research news by clicking the contact us tab at the top of the page.
The ResearchMatch team wanted to share this terrific video from our friends at the National Heart, Lung, Blood Institute about the importance of children participating in research.
The Ohio State University researcher, Andrew Hartwick, OD, PhD, is hoping that a new pupil testing strategy he is developing will be able to detect glaucoma earlier and more accurately. More information here.
ResearchMatch is proud to welcome University of Miami Clinical and Translational Science Institute to the team! Find out more about the exciting research they are doing here: miamictsi.org
This Valentine's Day and every day we are sending love out our 50,000+ Volunteers and 1900+ Researchers! We know you help make this world a better place by finding solutions to medical conditions. Our hearts are full of gratitude for every single research study that you all have been a part of.
Get matched today!
ResearchMatch welcomes Michigan State University to the ResearchMath team.
Michigan State (MSU) began as an Agricultral College in 1855 with a strong emphasis on research. Important research discoveries at MSU include hybrid corn, the process for homogenizing milk and a chemotherapy drug called Cisplatin. MSU is now one of the top research universities in the world and the only university in the country with on-campus medical schools graduating allopathic (MD) and osteopathic (DO) physicians, and veterinarians (DVMs).
Research and scholarship drive Michigan State University's mission which is to advance knowledge and transform lives by:
*providing outstanding undergraduate, graduate, and professional education to promising, qualified students in order to prepare them to contribute fully to society as globally engaged citizen leaders
*conducting research of the highest caliber that seeks to answer questions and create solutions in order to expand human understanding and make a positive difference, both locally and globally
*advancing outreach, engagement, and economic development activities that are innovative, research-driven, and lead to a better quality of life for individuals and communities, at home and around the world
If you want to learn about more current research at MSU you can visit here: www.msu.edu/research/index.html
They have proved they are good at what they do for over 150 years.
MSU, welcome to the ResearchMatch Team and Go Spartans!
"To care for him who shall have borne the battle and for his widow and his orphan"
- Abraham Lincoln
A few wonderful things to know about The Louis Stokes Cleveland VA Medical Center:
They serve more than 105,000 Veterans each year.
The Functional Electronic Simulation (FES) program developed the device that allowed Christopher Reeves (aka Superman) to breathe without a respirator.
The Louis Stokes Cleveland VA Medical Center has a several large, well-funded research programs and has current studies in —
* biomedical research
* health services research
* clinical and cooperative studies
* rehabilitation research
The Louis Stokes Cleveland VA Medical Center is committed to continually improving the health of Veterans through their research. ResearchMatch is proud to welcome The Louis Stokes Cleveland VA Medical Center to the team. We wish their researchers much success in their research endeavors and finding a match with our ResearchMatch Volunteers!
What is a clinical study, and why is it important?
A clinical study is research that involves people (called participants or volunteers). Clinical studies find new ways to prevent, detect, diagnose, or treat medical conditions. The process often starts in a laboratory where scientists develop ideas. Researchers then need people to take part in research to contribute to scientists’ knowledge and help in the development of treatments and cures. Volunteers may also receive state-of-the-art care from medical experts. There are two main types of clinical studies: clinical trials and observational studies.
In a clinical trial, also called an interventional study, volunteers receive specific treatments from researchers that follow set procedures according to a study plan. The treatments (called interventions) can be drugs or devices, a procedure or something as simple as a change in participant behavior. For example, a volunteer may take medicine for allergies or try out a new tool (device) to help make surgery easier or a volunteer may be required to change their diet by eliminating coffee.
Researchers doing observational studies collect data without using treatments. They observe and measure then draw conclusions from the information they collected. For example: A researcher wants to study lung size on adults with and without asthma during allergy season. The researcher will need to find participants with and without asthma in order to measure, compare and draw conclusions. Or another researcher may study the effects of exercise on the elderly and gain insight into a group of senior citizens with a medical condition.
Participating in a clinical study helps all of us and contributes to healthier lives. Researchers need healthy people as well as those with medical conditions. You can make a difference in the future by volunteering for research. Get involved, ask questions and help make life better for all of us!
Happy New Year!
From all of us on the ResearchMatch Team, we wish you a year filled with new treatments, devices and cures! We have an exciting year ahead and will continue to update you with news. We will share opportunities for Volunteers to help spread the word about ResearchMatch. Let’s make 2014 the year we take a chance and make a difference by volunteering for research!
ResearchMatch and Food Allergy Research & Education (FARE) are proud to announce the launch of the Food Allergy registry hosted on ResearchMatch.
An estimated 9 million adults and 6 million children have food allergies in the United States, that’s about 15 million American’s with food allergies. There isn’t a cure for food allergies now but we can all help support the research that is being done. In partnership with Food Allergy Research & Education (FARE), ResearchMatch has launched the first Food Allergy sub-registry created by researchers, advocacy groups and patients.
“Food allergy is a potentially life-threatening disease and a growing public health issue. As we work to support the development of treatments that will save lives, it is critical that clinical trials studying treatments for food allergy move forward as quickly as possible,” said John L. Lehr, CEO of FARE. “We are pleased to be partnering with ResearchMatch to offer a new, easier way for families and researchers to connect about clinical trials, which ultimately will allow us to make effective treatments available sooner to the broader food allergy community.”
All volunteers who register on RM indicating Food Allergy as one of their conditions will be prompted to answer optional questions created by researchers and about their condition. This will enhance the precision and prescreening process for matching volunteers with research teams studying Food Allergies. Those volunteers already registered with a food allergy will be prompted on their dashboard. All volunteers can update their conditions at any time when they login to researchmatch.org. Presently, researchmatch.org is the only non-profit clinical trials registry that proactively connects potential volunteers and researchers.
“The beauty of the Food Allergy sub-registry on researchmatch.org is that researchers can query for precise results of volunteers with the condition and at the same time they can also discover thousands of volunteers without food allergies willing to participate. Our ResearchMatch Volunteers register because they want to help find solutions and support research. It was an honor to collaborate with FARE on this registry. Together, we can all contribute to Food Allergy research.” Kathy Edson, ResearchMatch National Program Manager.
Food Allergy Research & Education (FARE) works on behalf of the 15 million Americans with food allergies, including all those at risk for life-threatening anaphylaxis. This potentially deadly disease affects 1 in every 13 children in the U.S. – or roughly two in every classroom. Formed in 2012 as a result of a merger between the Food Allergy & Anaphylaxis Network and the Food Allergy Initiative, FARE’s mission is to ensure the safety and inclusion of individuals with food allergies while relentlessly seeking a cure. For more information about Food Allergies please visit FARE (Food Allergy Research & Education) http://www.foodallergy.org/home.
On Tuesday, December 17, from 2 to 3 p.m. EST, ResearchMatch will join NIH Clinical Trials and You and the Michael J. Fox Foundation for an online Twitter chat about the cost of slow clinical trial volunteer recruitment and how it affects scientific progress. As a friend of ResearchMatch, you may already know that clinical trials are a crucial step on the path to developing new and better treatments for many medical conditions. Clinical trials across all diseases face an enduring lack of volunteers willing to participate. However, technology-based solutions, such as Researchmatch.org, are emerging as worthy opponents to this chronic problem. With your help and willingness to volunteer together we can make a difference. We need more people to join our team. Use your personal campaign link on your dashboard to ask your friends and family to help!
The chat will be moderated by Matt Herper (@matthewherper), science and medicine reporter for Forbes, and will explore recruitment challenges, the solutions that are currently available and how they continue to evolve. Follow hashtag #foxchat to share your own thoughts and questions with panelists from ResearchMatch, The Fox Foundation, the National Institute for Health Clinical Trials and You and the Alzheimer's Prevention Initiative. (We recommend following along with TweetChat.com, a free browser based tool.)
What's a Twitter Chat?
A Twitter chat is a free exchange of ideas between participants around a specific topic. You just type your questions or comments. Chats are public events and are open to anyone with a Twitter account; you don't have to be a longtime user to participate, either. Create a free Twitter account and tell all your contacts to join us on Tuesday, December 17th at 2p EST!
Happy MatchGiving from all of us!
We may not have told you lately, but hope you know it's true, that today and every day we're grateful for volunteers like you! The key to the success of ResearchMatch rests in our Volunteers, who embody the spirit of greatness by saying, "Yes I can!" Being a volunteer in research is a choice and we appreciate your willingness to be part of the solution. Thank you for GIVING yourself, your time and your participation. Thank you for saying YES.
Your desire to make a difference through research makes you a MATCH GIVER.
YOU are a part of the solution.
WE can all help find answers.
TOGETHER we are ResearchMatch.
The MatchMaestro award from ResearchMatch has been presented to the OSU CCTS for the second time!
The MatchMaestro award is presented semi-annually to partner institutions of the Clinical and Translational Science Award National Consortium for enrolling the most participants into studies at their institution using ResearchMatch.
There are more than 85 institutions using ResearchMatch, which is an NIH sponsored volunteer registry designed to match researchers and study volunteers. The MatchMaestro award will stay with OSU until another institution earns the right to take it by enrolling more research study participants using ResearchMatch.
Researchers at OSU and Nationwide Children's Hospital can help keep the MatchMaestro award at OSU by using ResearchMatch for volunteer recruitment and adding to the nearly 4,000 volunteers that have been enrolled at research studies through ResearchMatch at Ohio State.
Currently, there are 6,283 registered volunteers in the state of Ohio, making up more than 13% of all registered volunteers across the nation. More researchers at Ohio State have used ResearchMatch for recruitment than any other institution.
Congratulations to The Ohio State University!
We love our Volunteers and frequently we receive comments about how they help spread the word about ResearchMatch. With over 45,000 Volunteers in ResearchMatch, we know there’s a lot of chatter out there and we are very thankful! Today, we are super excited to present a letter from a Volunteer that was printed in a local newspaper.
Dear Newspaper Editor,
I recently received information that I would like to share with others. By chance, I happened to be introduced to and have a brief conversation with a woman who does medical research at the Cleveland Clinic. No one can deny that we have all benefited from medical research—immunizations, treatments, medicines, etc. But, when I met her and heard the phrase “medical research,” it dawned on me that I had always been on the receiving end of research, but had never helped or participated in any way. I don't think I'd ever had the option, but that still almost felt selfish!
So, just on the spur-of-the-moment, I asked her how they get people for research projects. I'm sure there are other ways, but what she gave me was an internet address: www.researchmatch.org. (Apparently it is simply one of the sources used by many medical researchers.)
I was curious and contacted ResearchMatch to ask questions. They were very nice and I liked what I learned. In brief, I found that researchmatch.org is a non-profit organization that gathers information from potential volunteers (both healthy and with medical conditions) to create individual profiles on file. There is no charge to do this and the information is kept confidential. When a profile of a volunteer matches an enrolling research study, that person will be contacted by ResearchMatch about the study and can decide whether or not to participate. If the person decides to take part, the researcher is then notified. The studies vary in type from online surveys that can be completed at home to clinical trials at the institution of the researcher. No one is ever obligated to participate and anyone can completely withdraw from researchmatch.org at any time.
I was interested in this, and thought others might be too.
A Grateful for ResearchMatch Volunteer
And we are very GRATEFUL to YOU and all our Volunteers. Together, we make a difference in research. Do you have a RM story to share or a letter that you wrote about ResearchMatch? Click the ‘Contact Us’ tab at the top of the page.
We’d love to hear from you!
A partner with the Institute of Translational Health Science at the University of Washington, Benaroya Research Institute at Virginia Mason is an international leader in immune system and autoimmune disease research. They are one of the few research institutions in the world dedicated to researching autoimmune diseases to discover cause and cures.
One in every 20 Americans suffers from an autoimmune disease. Autoimmune diseases happen when the body’s immune system attacks itself and there are 80 different autoimmune diseases. Some examples include multiple sclerosis (MS), type 1 diabetes and rheumatoid arthritis. People living with an autoimmune disease can have more than one of these conditions so researchers at Benaroya Research Institute aren’t focused on eliminating one or two autoimmune diseases—they’re taking on all 80! We welcome this amazing group of researchers to our team.
On behalf of over 45,000 ResearchMatch volunteers waiting to participate in research, we say bring it!
Beth Israel Medical Center is one of New York's premiere hospitals and part of the Albert Einstein College of Medicine Institute for Clinical and Translational Research. The Einstein CTSI consortium shares a common vision of accelerating laboratory discoveries and engaging communities in clinical research efforts. It is focusing on the crucial step of training the next generation of clinical researcher. A teaching hospital founded in 1889, Beth Israel Medical Center is known for its unique approach to combining medical excellence with clinical innovation. The hospital has world-class specialists in heart disease, cancer, neurology, and orthopedic, gastrointestinal disease, chemical dependency, psychiatric disorders, pain management and palliative care, and HIV/AIDS research and treatment. The hospital also has significantly advanced its commitment to community-based ambulatory care and expanding patient access to primary and specialty care. Please find more information here.
ResearchMatch welcomes the researchers from Beth Israel Medical Center. We wish you the best matches with your current and future research endeavors!
ResearchMatch Teams Up With Dysautonomia International to Connect Postural Orthostatic Tachycardia Syndrome Study Volunteers with Researchers
ResearchMatch (RM), the country’s first nationwide, non-profit, volunteer, research recruitment platform for all health conditions, is launching a research registry for Postural Orthostatic Tachycardia Syndrome (POTS) patients in collaboration with Dysautonomia International, an non-profit patient advocacy group dedicated to identifying the causes and cures for all forms of dysautonomia, including POTS. RM's innovative collaboration with Dysautonomia International provides a voice for POTS patinets in the research process.
Standing up is something most of us do every day. Imagine if this simple act was a challenge. POTS patients experience excessive heart rate increases upon standing, and this is often accomplanied by many other symptoms such as chest pain, shortness of breath, lightheadedness, gastrointestinal problems and cognitive impairment. The disability seen in POTS has been compared to what is seen in Congestive Heart Failure and Chronic Obstrictive Pulmonary Disease, yet the majority of POTS patients are young women. It is estimated that 1 out of every 100 teens develop POTS before adulthood, and about 80% of patients are female. Boys and adult men and women can develop POTS as well.
Dr. Satish R. Raj, Associate Professor of Medicine and Pharmacology, and preeminent POTS researcher at the Autonomic Dysfunction Center at Vanderbilt University, notes, “Clinical research is going to be the vehicle for advancing our understanding of POTS, and for the development of more effective therapies. ResearchMatch will allow for POTS researchers to more easily find those POTS patients interested in participating in research studies. I hope that ResearchMatch will catalyze our research.”
“Dysautonomia International is eager to team up with ResearchMatch to enroll as many POTS patients as possible in the ResearchMatch database. We're working with patients and researchers to do all that we can to support research, so that we can figure out what causes POTS, how to effectively treat it, and hopefully someday how to cure or prevent it,” said Lauren Stiles, Esq., President of Dysautonomia International.
In partnership with The Ehlers-Danlos National Foundation, ResearchMatch has launched a sub-registry for Ehlers-Danlos Syndrome (EDS) a genetic, connective tissue disease. There are six major types of EDS most commonly affecting joints, skin and blood vessel walls and the symptoms vary from mild to life-threatening. Although great strides have been made in research, we need to continue the search for knowledge related to early detection, diagnosis and treatment for EDS patients. It is through research that scientists can improve the quality of life for people with Ehlers-Danlos Syndrome.
“EDNF is thrilled that ResearchMatch is creating a sub-registry for Ehlers-Danlos Syndrome. This will help facilitate much needed research that will positively affect people living with EDS, as well as their friends and families, and that's a big part of EDNF's mission. Thank you, ResearchMatch.” -Sandy Chack, Board of Directors Chair, Ehlers-Danlos National Foundation
All volunteers who register with RM indicating Ehlers-Danlos Syndrome as one of their conditions will be prompted to answer optional questions about their condition to enhance the precision and prescreening process for matching volunteers with research teams studying EDS. Presently, Researchmatch.org is the only non-profit clinical trials registry that proactively connects potential volunteers and researchers. For more information about Ehlers-Danlos Syndrome please visit The Ehlers-Danlos National Foundation who creates resources for those affected by the connective tissue disorder Ehlers-Danlos syndrome by leading the search for Knowledge about EDS and building a Community of people who work together to effect Change.
Eosinophilic Esophagitis is a rare disease and a chronic, allergic condition of the esophagus which can cause vomiting, difficulty swallowing and abdominal problems among other symptoms. Children and adults are affected and it greatly impacts quality of life for patients. More research is needed on this condition and ResearchMatch wants to connect researchers studying this condition with patients to facilitate engagement that may advance the process of discovering new therapeutics. All volunteers who register with RM indicating the condition Eosinophilic Esophagitis can now be better connected with investigators who study at sites in this condition. RM volunteers will be prompted to answer optional, targeted questions about this condition to enhance the precision and prescreening process for matching volunteers with research teams. Presently, Researchmatch.org is the only non-profit clinical trials registry that proactively connects potential volunteers and researchers. We especially want to thank the researchers and advisory that helped to create this new sub-registry.
RM has a simple goal – to bring together two groups of people who are searching for each other: people who are trying to find research studies, and researchers who are looking for people to participate in their studies. It is a free, secure, online registry that has been developed by major academic institutions across the country to engage others in the mission of today’s ethical, expedited research and will hopefully make a real difference for people with Eosinophilic Esophagitis in the future.
We are so proud of the work that HIV activists do! They are the brave voice for so many people and stand tall for HIV research. We think they are FABULOUS! Recently, ResearchMatch launched an HIV sub-registry to better match our HIV volunteers with HIV researchers. ResearchMatch is proud to present this blog post and video from TheBODY.com called, "My Fabulous Disease, A Cure for Aids: The HIV Advocates Turning Hope Into Action". You can read the blog and watch the video here.
The Medical College of Wisconsin is part of the Clinical Translational Science Instute of Southeast Wisconsin. ResearchMatch is proud to welcome them to the team! Find out more about the exciting research they are doing here.
ResearchMatch (RM), the country’s first nationwide, non-profit volunteer research recruitment platform for all health conditions has launched a sub-registry for Intellectual and Developmental Disabilities (IDD) in collaboration with the Vanderbilt Kennedy Center for Research on Human Development, a Eunice Kennedy Shriver Intellectual and Developmental Disabilities Research Center (EKS IDDRC) dedicated to improving the quality of life of persons with disorders of thinking, learning, perception, communication, mood and emotion caused by disruption of typical development.
RM has a simple goal – to bring together two groups of people who are searching for each other: people who are trying to find research studies, and researchers who are looking for people to participate in their studies. It is a free, secure online registry that has been developed by major academic institutions across the country to engage others in the mission of today’s ethical, expedited research and will hopefully provide a voice for people with IDD in the future.
The National Dissemination Center for Children with Disabilities estimates that 6.5 million people in the United States have an intellectual disability. It is through research that scientists can learn about causes and improve the quality of life for people with intellectual and/or developmental disabilities. Although, great strides have been made in research, we need persons with intellectual and/or developmental disabilities not to be excluded from research that might benefit them as members of the general population.
“As the Director of the Vanderbilt Kennedy Center, whose goals are to facilitate discoveries and best practices that make positive differences in the lives of persons with developmental disabilities and their families, I was delighted to hear of the plans to extend functionality to include a condition-specific sub-registry. I look forward to sharing opportunities to collaborate and strengthen both ResearchMatch and provide a voice to those individuals with idiopathic intellectual disabilities.” ~Elisabeth M. Dykens, Ph.D., Annette Schaffer Eskind Chair and Director, Vanderbilt Kennedy Center; Co-Director, Vanderbilt Kennedy Center for Excellence in Developmental Disabilities; Professor of Psychology & Human Development, Psychiatry, and Pediatrics at Vanderbilt University.
All volunteers who register with RM indicating IDD as one of their conditions will be informed of enrolling studies in their area and also be connected with investigators who register studies at sites in their area. New RM registered members will also be prompted to consider answering optional questions about their condition to enhance the precision and prescreening process for matching volunteers and research teams. Presently, Researchmatch.org is the only non-profit clinical trials registry that proactively connects potential volunteers and researchers.
Robot uses steerable needles to treat brain clots! Brain clots are a leading cause of death and disability with the odds of 1 in 50 over a lifetime of getting an intercerebral hemorrhage and more than 40% of those patients die within a month. Most survivors have brain damage. Researchers at Vanderbilt University have created a robot to relieve the damaging pressure caused by hemorrhaging. It uses steerable needles to penentrate the brain and suck the clot away, acting like a tiny vacuum cleaner. This can save lives. Now, that's a WOW to the wonderful researchers at Vanderbilt University!
GAME ON! The ResearchMatch Personal Campaigns Challenge was a big hit with our volunteers! Thank you everyone for participating. Wow, you really gave it your all and we appreciate your awesome effort in the ResearchMatch Personal Challenge! We want to thank you for taking an active stand to help get more people involved in research. Through your personal campaigns you have connected family and friends to the world of research. Together we are all part of the solution. The ResearchMatch team was pleased to see so many volunteers accepted the challenge. One of our winners, Sarah Green had this to say, "There are opportunities for everyone to participate in health research and I wanted to make more people around me aware of how to get involved through ResearchMatch. I used Facebook and Twitter for my personal campaign and encourage others to share my link and spread the word." and Amanda MacDougal Scott added, "I sent personal emails to as many friends who I thought would be interested and oblige my plea to volunteer. I put it on Facebook, but as I knew it would be: email was more successful. I also texted some people to follow up to make sure they signed up."
Hurray for our winners, all our volunteers and for research! Everybody wins!
You only have a short time until the Personal Campaigns Challenge ends! Login to ResearchMatch now to find your personal URL link to send to friends and family. Copy and paste the link on email, FB, blogs, texts and twitter. Call your mom, text your brother, blog about it and send to your best friend, email your neighbors! Send it to everyone you know because the top three people with the most visitors win a $50 gift card! The challenge ends Sunday evening at midnight.
What are you waiting for? Ready, set, go...
The Personal Campaigns Challenge is coming to a close soon! Use your personal campaign link to get as many people as you can to visit the ResearchMatch site by midnight on June 30, 2013. Login to ResearchMatch with your username and password to access your personal campaign link. Shout it out to your world by copying and pasting the link to your email, blog, Facebook and twitter. One last push may put you at the top of the leaderboard! Ready, set, go login!
Announcing the ResearchMatch Personal Campaigns Challenge!
Why is everyone talking about ResearchMatch? Because ResearchMatch has connected thousands of people just like you with research studies to find answers for hundreds of important health conditions like Autism, heart disease, breast cancer, diabetes, Alzheimer’s Disease , HIV and more!
ResearchMatch is CELEBRATING! This made us think of YOU and how you, our VOLUNTEERS can help spread the word to the world about Researchmatch. The good work WE do depends on YOU, so put your passion into play with our personal campaigns challenge! Yes, that’s right. YOU create your own Personal Campaign for Research!
Announcing the ResearchMatch Personal Campaigns Challenge! We challenge YOU to get the most people that you can to visit ResearchMatch and we will reward the top three people! There's no limit to how you can personally help raise awareness for Researchmatch. The more people you get to visit, the better your chances! It only takes a click on Researchmatch.org to build your own campaign. Then invite your friends to visit – that’s what friends are for! You will be amazed how your campaign can multiply efforts to create awareness for research. ResearchMatch researchers are looking for volunteers of all ages and every health status to participate in research studies. Ready for the RM Challenge?
1. Log on to RM and ResearchMatch will automatically create a personal URL/link for you on your dashboard.
2. Copy and paste your link to Email, Blog, FB Posts and Tweets. Share your link as many times as you want!
3. Spread the word, talk about research, honor a loved one, celebrate a birthday. Give this gift and invite people to visit!
4. Score some easy points because the top 3 people pointing visitors to ResearchMatch through the month of June will win a $50 gift card!
5. When people click your link you can watch the visitor ranking on your dashboard.
What are you waiting for? The challenge starts right now and runs through June 30, 2013. ...are your friends and family a Match? READY, SET… GO!
The Patient-Centered Outcomes Research Institute (PCORI) announced ResearchMatch winner of honorable mention on the PCORI Challenge, a competition to connect patients and researchers as partners.
“We’re very pleased to recognize the PCORI Challenge winners and the potential they have demonstrated for new ways to link researchers and patients as partners in research,” said Anne Beal, MD, MPH, PCORI’s Deputy Executive Director and Chief Officer for Engagement. “Patients, caregivers, clinicians, and other stakeholders must be actively involved in the development and conduct of health research to fill the knowledge gaps that hinder health decision making.” ResearchMatch is proud to accept this award on behalf of all our Volunteers, Researchers, Institutions and Community Partners.
Thank You, PCORI. The BEST is yet to come!
We ALL are part of the solution. Recently, ResearchMatch surveyed a random sample of our volunteers and were pleased to hear back from so many of you so quickly! We randomly selected and invited ResearchMatch ‘volunteers’ in roughly equal numbers across six age categories (19-29 years; 30-39 years; 40-49 years; 50-59 years; 60-69 years; 70+ years). ResearchMatch has a strong and diverse user base of researchers and volunteers. Healthy persons, patients and caregivers have registered from every US state and the District of Columbia. The current population of ResearchMatch users has shown strong interest in helping change the national landscape of medical research. It really means a lot to us to hear from so many of you so we wanted to share some of the results.
61% Agree that it is important for patients/volunteers to be involved in decision-making regarding study design.
55% Disagree that Patients/volunteers should agree that a research question is important before a researcher can receive funding to conduct the research.
76% Agree that Patients/volunteers and other stakeholders need to feel a sense of ownership of the research process.
97% Agree that Patients/volunteers are more likely to engage in research when the study is reflective of their needs.
80% Agree that it is important for patients, families and caregivers with limited resources, living in hard to reach locations or those who are non-English speaking to be included in all stages of the research process.
86% Agree that they would be willing to formulate research questions (i.e. suggest research ideas; help researchers refine study ideas to increase relevance to study population)
81% Agree that they would be willing to work with researchers to develop research materials (i.e. data collection forms, recruitment materials).
80% Agree that they would be willing to provide input for determining research protocols (i.e. which studies should receive funding, prioritize funding opportunities).
86% Agree that they would be willing to help review and share study results.
88% Agree that they would be willing to participate in focus groups or online discussions about research policy (i.e. patient privacy, data quality, etc.).
Want to learn more about what clinical research is? Brought to you by one of our partner institutions, the Ohio State University, Study Notes offers intriguing insight into the world of research with an article-based approach. With blog entries authored by scientists and other researchers, you can get a preview of what clinical research is like in the field. Check it out and learn a thing or two about research and just how easy it is to be involved!
This Mother’s Day give the gift of participating in research by volunteering on Researchmatch. Already a volunteer? Talk to your mom about signing up. Already a mom? Register your children. Researchers are ready to make this world a better place but they need ALL of US to help. Tell your mom (and all your friends) about the great gift you gave to research by registering on ResearchMatch. Go to your dashboard and click on “find out about personal campaigns”. This is where the magic happens. ResearchMatch will create your own personal URL link that you can post on Facebook, Twitter, Blogs and in emails. Each time your mom (or one of your friends) clicks your link you can follow the crowd on your dashboard. It’s like sending your voice in a web link that says, “I gave the gift of research buy joining Researchmatch and you can, too!” What are you waiting for? It’s a great gift and researchers (and your mom) will love you for it. Create your personal campaign now.
HIV Researchers and those with HIV infection help create new ResearchMatch.org sub-registry.
ResearchMatch recently added an HIV sub-registry to its nationwide, condition-neutral, research volunteer registry. Those in the field of HIV-AIDS research and those individuals who are HIV positive participated in focus groups to help identify an additional set of questions to create the ResearchMatch HIV sub-registry. The addition of optional targeted questions for volunteers who identify themselves as having an AIDS or HIV condition will add precision to the matching process of volunteers to researchers seeking volunteers for these AIDS-HIV research.
You can thank a researcher if:
You take medicine to treat your allergies.
Your cat doesn’t have fleas and your dog doesn’t have heart-worm.
Your grandmother has a new hip.
You and everyone you know has never had smallpox.
Your children have never had the measles, polio, mumps, or chicken pox.
You know someone who takes insulin to control diabetes.
Your mom has recovered from breast cancer with the help of surgery, chemo or radiation therapy.
Your dad recovered from a heart attack with the aid of stents or bypass surgery.
Your friend had a kidney transplant and no longer needs dialysis.
Your grandfather survived a stroke and hasn’t had a second one.
Your uncle with Parkinson’s Disease has a better quality of life thanks to deep brain stimulation.
Your sister with epilepsy has been seizure free for years thanks to drugs or surgery.
Your aunt with leukemia is alive today because she had a bone marrow transplant.
You or someone you know had surgery and slept through the whole thing,
You feel great today!
Thank you Researchers for perservering for all of us.
Thank you Volunteers because YOU are a part of the solution!
Jack Andraka is only 15 years old and is working on a simple test to identify pancreatic, lung and ovarian cancer. Someone close to him died of pancreatic cancer so Jack started researching the disease. After discovering that 100 people die of pancreatic cancer every day, Jack, who loves a challenge, discovered a way to create a rapid, inexpensive sensor to detect pancreatic cancer. After 199 rejections to bring it to trial, one of our Researchmatch institutional partners, Johns Hopkins invited Jack to a meeting and well, the rest of the story is here...
HAPPY WORLD AUTISM DAY! Our hearts are lit up and beating BLUE today! We wanted to share our hero, Justin and the awesome school he attends through the Project HOPE Foundation called HOPE ALIVE. Check it out here.
Just two decades ago, Autism affected 1 in 5,000. Today, it affects 1 in 88, including 1 in 54 boys that have been diagnosed with Autism Spectrum Disorder. Even with an increase in awareness, we need to do more. Researchmatch recently launched the frst nationwide sub-registry on Autism Spectrum Disorder (ASD). A set of valuable queries were created by a focus group of key stakeholders that included patients, famlies, ASD advocates, physicians and researchers. This has been added to the volunteer registration process. This will add precision to the matching process of volunteers on the spectrum with researchers who are seaking volunteers for their studies. April is Autism month so we still have a whole month and beyond to celebrate! And as for Justin, we think he is AWESOME!
Researchmatch is celebrating! We have over 34,000 amazing people from across the country that have signed on as volunteers for research on our Researchmatch site! We are so proud of our Volunteers, 1,545 Researchers and 78 Institutions for being part of the solution. Research affects all of us- ranging from the medicines we take to the overall health of our communties. We all can make an impact. Becoming a research participant is the gift that keeps on giving and we are happy to say we have 34,000 wonderful presents and growing. Thank you!
Do you ever wonder if VOLUNTEERING for Researchmatch makes a difference? We think our VOLUNTEERS are important because YOU are the solution. We are encouraging our researchers to cite ResearchMatch in their reports. The Ohio State University Center for Clinical and Translational Science surveyed citizen’s perceptions to gauge the value and concerns of Lake Erie and recruited Researchmatch Volunteers! See an example in this study from The Ohio State University here.
A recent study by the University of Michigan found that only 5% of children participate in research, while only 12% of parents said they were aware that children could participate. You may be surprised to learn that many medications (70-80%) have not been studied in children. We all know that research is very important to the health industry but did you realize that research is also crucial to the toy industry. The Wii Fit game offers activities that improve exercise and balance. It took research with children to create it. Football helmets are critical to safety on the football field and took years of research to produce. Common items we use every day on our kids, like Band-Aids were created from research. Through research we discover the evidence-based information that ultimately enables us to improve the quality of health that we provide to children. Clinical trials are conducted to test the safety and effectiveness of medications and devices in human subjects. Through participation in clinical trials, some children may receive some benefits for their condition, gain access to new medications or devices not yet approved, and healthy children contribute to future understanding and improved treatments for particular conditions.
ResearchMatch has created a Pediatric Taskforce to address the need for pediatric volunteers in health research. We need all stakeholders at the table. Parents Welcome! If you are interested in joining this taskforce or participating in a focus group about recruitment of pediatric volunteers, please contact ResearchMatch at firstname.lastname@example.org.
ResearchMatch continues to function for all conditions but now offers an option for specific sub-registries like Autism Spectrum Disorder.
Recently, researchers in the field of Autism Spectrum Disorder, as well as individuals who are on the spectrum, their families, and advocates participated in focus groups to identify questions creating a “sub-registry” of individuals who share the condition known as Autism Spectrum Disorder. This team of key stakeholders identified a set of questions to add to the volunteer registration process on ResearchMatch.org. These additional questions will help match volunteers on the spectrum with researchers who are seeking volunteers for their studies.
More sub-registries will be added to ResearchMatch in the near future and will follow the format of development used to create this first sub-registry for Autism Spectrum Disorder (ASD) that is housed in the ResearchMatch (RM) database. All volunteers who have already registered on RM indicating ASD as one of their conditions will be prompted through newsletters, emails, and during login to the site to consider answering the optional questions about their condition. When new volunteers register and indicate a condition that has a sub-registry associated with it the volunteer will automatically be presented with optional questions that will assist in creating the sub-registries thus increasing the precision and prescreening process for matching volunteers and research teams.
Please share this exciting news with your friends, family and social networks. Together, we can make a difference!
Right now, you’re looking at the redesign we’ve been sweating over for months. We've redesigned ResearchMatch to be more user friendly, more functional, more informative, and simply easier to use.
let us know what you think,
let us know if you have any problems using the site,
or let us know how we can improve by contacting us.
We value your thoughts, opinions, and concerns.
As part of our quality improvement program, the ResearchMatch team welcomes feedback from volunteers. Your anonymous survey responses will guide our quality improvement, operations, and development plans so that we can better match you with research studies. At the end of the survey, you will be invited to participate in a drawing for a ResearchMatch travel mug. You will also be invited to participate in an optional online focus group discussion to be held at a later date. The ResearchMatch team thanks you for helping us to improve this national registry.
Complete the survey here.
This quarter, the MatchMaestro will be traveling to the University of North Carolina at Chapel Hill! Between July 1st and September 30, 2012 researchers at UNC enrolled more ResearchMatch volunteers into studies than any other ResearchMatch site. This quarter marks the first time that UNC has received this prestigious award. Please join the ResearchMatch community in congratulating Marschall Runge, Doreen Steed, Michelle Maclay and the rest of the NC TraCS team on recruitment well done!
The Institute for Clinical and Translational Science at the University of Iowa (ICTS) threw down the gauntlet and challenged Northwestern University to a ResearchMatch challenge of epic proportions. The two Big 10 institutions will compete for bragging rights to see who can enroll the most research participants in ResearchMatch, an on-line registry designed to match potential research subjects with research studies. The challenge begins at 8:00 a.m. CST on Oct. 22 and continues thru 8:00 a.m. CTS on Oct 29, coinciding with the football game between the two schools at Northwestern on Saturday, October 27.
Laurie Lebo, ResearchMatch diva and program manager for the national registry, said the event is a good way to raise awareness about the importance of participating in medical research. “It’s a fun way to reach a lot of people and let them know that we need everyone - young and old, healthy and those with health conditions, players and fans, students and alumni - to get involved so we can find better treatments and cures for a variety of diseases,” she said. It’s easy to sign-up for ResearchMatch. Visit your favorite team’s website (see below), take a few minutes to fill out your profile, and then ResearchMatch will send you an email with information about potential studies. If you are interested in learning more about a study, ResearchMatch will share your contact information with the appropriate researcher. The choice to participate is always yours. As you enjoy the football game, remember: no matter who wins on the field, everyone wins when you join ResearchMatch.
Hawkeye fans sign-up here!
Northwestern fans sign-up here!
Questions?Contact Kathleenemail@example.com or call 319.384.8319
CenterWatch offers several services and resources specifically to patients. With our Clinical Trial Listing Service we are able to provide patients unbiased information on clinical trials, with a clinical trial database that contains thousands of currently enrolling trials. Information on drugs and new medical therapies are available to review. CenterWatch also provides patients with health and educational resources about clinical trials and other health information. ResearchMatch is excited about partnering with CenterWatch to provide information about participating in clinical research.
The University of Rochester Clinical and Translational Science Institute has been named the first, two-time winner of the MatchMaestro award from ResearchMatch, a national, web-based study recruitment registry. Each quarter, the MatchMaestro trophy is awarded to the institution that has enrolled the highest number of research study volunteers. When the University first received the award during the fourth quarter of 2011, UR researchers enrolled 162 volunteers. To receive the trophy during the second quarter of 2012, the UR study teams of James Dolan and Qinghau Li; Michael McKee; and Ronald Rogge and Jack Peltz successfully enrolled 125 volunteers.
“ResearchMatch makes the connection between researchers and volunteers, and together, they improve medical knowledge. It is our pleasure to work with the ResearchMatch team,” said Nancy Needler, Research Subject Advocate for the CTSI and Institutional Liaison for ResearchMatch. “The ResearchMatch team is very supportive of our researchers, and our study teams appreciate the opportunity to use this recruitment tool.”
There is no cost to register for ResearchMatch and the system is secure. To learn more about how you can join the registry as a researcher or as a volunteer, please click here.
NIH director Francis S. Collins, MD, PhD, explained in a statement that recruiting sufficient numbers of volunteers is a key challenge for clinical trials and that lack of information about what clinical trials are and how to participate may be keeping patients from enrolling.
Patients seeking more information about clinical trials and how to enroll in them have a new resource, a website (http://clinicalresearchtrials.nih.gov) launched recently by the National Institutes of Health (NIH). The site also provides resources for clinicians.
The site provides basic information about participating in clinical trials, including several first-hand accounts from trial participants and parents who have enrolled their children in trials, and features videos from researchers explaining the purposes and importance of clinical trials. The site also provides links to such resources as ClinicalTrials.gov, which can help patients find trials they may be interested in joining, and the ResearchMatch, an NIH initiative that matches volunteers and researchers.
The MatchMaestro has been awarded to Ohio State's Center for Clinical and Translational Science (CCTS) for the first quarter of 2012. The MatchMaestro is awarded quarterly to the Clinical and Translational Science Award (CTSA) institution that has enrolled the most participants in research studies at their institution via matches made through ResearchMatch.org, the NIH-sponsored volunteer registry that helps match researchers and volunteers.
Register as A Research Study Volunteer
Like the Stanley Cup, there is only one MatchMaestro; it will be OSU's until the end of the 2nd quarter (June 2012). OSU will have to once again enroll more volunteers into research studies than any other site during this quarter or release the MatchMaestro to another institution.
As of April 30, 2012:
- Ohio State leads the nation in the number of participants enrolled in studies through ResearchMatch (2,228).
- OSU leads the nation in the number of researchers who are using ResearchMatch to recruit volunteers (133 researchers).
- The State of Ohio leads the nation in the number of volunteers registered (3,403 volunteers).
- Within 50 miles of Ohio State, there are 2,296 registered volunteers, which is more than 10 percent of the national registry.
Congratuations to The Ohio State University!
Nancy Needler, Research Subject Advocate at the University of Rochester Clinical and Translational Science Institute, explains the ResearchMatch Program. ResearchMatch is a secure, free, nationwide, web-based matching tool that helps connect researchers and study volunteers. The University of Rochester is the first recipient of the MatchMaestro Award from ResearchMatch, which recognizes the institution that enrolls the most volunteers into research studies each quarter.
On January 1, 2012, the University of Rochester became the first recipient of a prestigious award recognizing excellence in matching volunteers with enrolling studies. A primary goal of the Clinical and Translational Science Awards (CTSA) is to speed the discovery and delivery of health care to the US population. A major barrier, or road-block, in this process is the ability to enroll volunteers into clinical and behavioral research studies. Last quarter, the University of Rochester enrolled 162 ResearchMatch volunteers into research studies. To date, over 119,900 ResearchMatch study invitations have been sent to our volunteers and over 2,400 volunteers have been enrolled in studies.
As the old saying goes “It is better to give than to receive.” But the “giving” part can take on many forms. KUNC commentator Dr. Marc Ringel has found a way of paying it forward that could have immeasurable results where the medical world is concerned. Visit http://www.kunc.org/post/god-bless-everybody to listen/read the broadcast.
NetWellness is .....a non-profit consumer health web site that has been in operation for over ten years. It provides high quality information created and evaluated by medical and health professional faculty at the:
Baystate Medical Center was chosen by the National Institutes of Health to be among 52 institutions to be part of ResearchMatch, the first-ever national volunteer online recruitment registry. View the full article from masslive.com at: